CONCORD (CoOrdiNated Care Of Rare Disease) Research Project
Genetic Alliance UK still have spaces available in upcoming focus groups for their research project CONCORD (CoOrdiNated Care Of Rare Disease).
They are currently recruiting for focus groups for rare disease patients, carers and healthcare professionals. These focus groups are crucial to help the researchers understand the needs and concerns of both patients and healthcare professionals, and will inform the development of a larger survey down the line.
– Patients and carers: Online, 11 December 2018
– Patients and carers: Birmingham, 6 February 2019 (travel & childcare covered)
– Healthcare professionals: London, 23 or 29 January 2019 (travel covered)
For more information on the project, and to see the full adverts for the focus, see here.https://www.geneticalliance.org.uk/…/new-research-how-car…/…
If you would like to take part in this research or would like to ask further questions, please contact Holly Walton: holly.walton@ucl.ac.uk / 0203 108 3068